Adolescents with Intellectual Disability and Sexuality Matters: opinions, experiences and needs
https://doi.org/10.54088/0io977
Keywords:
Intellectual Disability, Adolescent, SexualityAbstract
The present review analyzes sexuality activities of adolescents with Intellectual Disability. The term «Intellectual Disability» was introduced in 2013 as part of neurodevelopmental disorders, replacing the term «Mental Retardation». The onset of this situation happens during children’s growth. According to the World Health Organization (WHO), sexuality constitutes indefeasible part of human’s personality, it is a basic need and constitutes part of human nature, without however differentiate it from the other parts of life. Sexuality is of vital importance on adolescents’ life with Intellectual Disability, who are capable to develop parts of sexual behavior according to society’s rules while additionally adolescents may desire, append, and maintain interpersonal relationships. Worries and needs of adolescents with Intellectual Disability referring to sexuality activities are not differentiated on their base from these of general population. The history of sexual education for disabled people worldwide, has characterized from disuse, distortion, and tolerance. The analysis of data concerning sexuality and sexual behavior of adolescents with Intellectual Disability, as these are presented in bibliography, indicates the need of sexual education programs to be organized, with parallel information and counseling of their families. This review’s findings aspire to constitute stimulus for the scientific and social recognition and elevation of the phenomenon of misprision of sexual awakening of adolescents with Intellectual Disability, as well as of the phenomenon of discrimination and exclusion. It, finally, aims at apprehending people with Intellectual Disability as individuals with sexuality, acceptable from the society.
References
American Psychiatric Association. DSM-5: Diagnostic and statistical manual (5th Ed.) (2013), Washington, DC, American Psychiatric Association.
Tobin, M.R., & House, A.E. DSM-5: Diagnosis in the Schools (2016). New York: The Guilford Press.
Brue, W.A., & Wilmshurst, L. Essentials of Intellectual Disability Assessment, and Identification (Essentials of Psychological Assessment-1st Ed.) (2016). USA: John Wiley & Sons.
World Health Organization. Better health, better lives: Children and young people with intellectual disabilities and their families (2010). Conference proceedings review of “World Health Organization Regional Office for Europe, Bucharest, Romania”.
Apteslis, N. Sexual education of students with mental retardation in school age: estimate od needs and making intervention programs (2012). Volos: University of Thessaly.
Kouroubli, P. The role of institutional and legislative interventions in the procedure of enfeeblement of social prejudices in people with special needs (1997). Athens: Greek Letters.
Booth, T., & Ainscow, M. Index for inclusion: developing learning and participation in schools (2000).
Panaikas, P., & Kyriaki, S. Sexual education and mental retardation: theoretical and research approach (2003). Athens: Idiotikh.
Craft, A. Mental Handicap and Sexuality, Issues and Perspectives (1987). Kent: Costello.
Brown, R.T. Somatic, cognitive, and psychosocial development of teenagers. In Holland-Hall, C. & Brown, R.T. Secrets of Puberty Medicine (2005). Athens: Publications Iatrikes P.Χ. Paschalides.
Greydanus, D., & Tsitsika, A. Childhood and Adolescent Sexuality (2009). In Greydanus, D., Pratt, D., Patel, H., Calles, I. (Eds). Behavioral Pediatrics, 3rdEdition. Nova Publishers.
Thomas, D. &Woods, H. Mental Retardation: theory and practice (2008). Sideri, Α. & Deropoulou, Ε. (Edit). Athens: Topos.
Vidalaki, Μ., Lagiou, Α., Sourtzi, Μ. & Frisiras, S. Sexual education through educational texts. Sexual education and health (1992). Athens: Organization of Family Planning.
Dimou, G. Sexuality of people with mental disability in Greek reality. PhD in Pedagogy Department of Primary Education in the sector of Special Education and Psychology (2008). Athens.
Leivadiotou, X., Chatzisevastou-Loukidou, Χ., Stogiannidou, Α. Knowledge of people with Down syndrome and parental attitudes concerning sexual behavior. Pediatrics, 2004;67, 105-114.
Duh, J. Sexual Knowledge, Attitudes and Experiences of High School Students with and without Disabilities in Taiwan. Education and Training in Mental Retardation and Developmental Disabilities, 1999;34(3), 302-311.
Dimitrakopoulou, V. Teenagers with mental retardation views concerning sexuality (2010). Postgraduate dissertation Athens: National and Kapodistrian and University of Athens.
Pavlidou, S. Parental views concerning sexuality of people with mental disability or/and autism (Dissertation) (2019). Thessaloniki: University of Macedonia.
Newton, G. https://www.autism.com/understanding_social_sexuality (2017).
Lunsky, Y., & Konstantareas. The attitudes of individuals with autism and mental retardation towards Sexuality. Education and Training in Mental Retardation, 1998;33(1), 24-33.
Edmonson, S., McCmbs, K. F., Wish, J. What retarded adults believe about sex. American Journal of Mental Deficiency, 1979;84, 11-18.
Timmers, R., DuCharme, P., Jacob, G. Sexual knowledge, attitudes, and behaviors of developmentally adults living in a normalized apartment setting. Sexuality and Disability, 1981;4(1), 27-39.
McCabe, M. Sexual Knowledge, experience and needs scale for people with intellectual disability (SexKen-ID) (3rd Ed.) (1993). Melbourne: Psychological Research Centre, Deakin University.
Cheng, M. & Udry, R. Sexual Experiences of Adolescents with Low Cognitive Abilities in the U.S. Journal of Developmental and Physical Disabilities, 2005;17(2), 155-172.
Dewinter, J., Vermeiren, R., Vanwesenbeeck, I. & Van Nieuwenhuizen, Ch. Parental Awareness of Sexual Experience in Adolescent Boys with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 2016;46, 713-719.
Holmes, L. G., & Himle, M. B. Brief report: Parent-child sexuality communication and autism spectrum disorders. Journal of Autism and Developmental Disorders, 2014;44(11), 2964–2970.
Walter, J. From taboo to self-actualization-acceptance problems and learning processes in working with mentally handicapped patients. Praxis der kinderpsychologie und kinderpsychiatrie, 2002;51(8), 587-597.
Tsitsika, Α., Konstantoulaki, Ε., Boutziouka, V., Deligiannis, I., Dimitrakopoulou, V., Kritseli, E, Tounissidou, D., Tsolia, Μ., Papaevaggelou, V., Kontstantopoulos, A., Kafetzis, D. (2009). Management of sexuality from Greek teenagers: Study conducted in Athens. Pediatrics, 2009;73(3), 206-212.
Carr, L.T. Sexuality, and people with learning disabilities. British journal of nursing, 1995;4(19), 1135-1141.
Abramson, P.R., Parker, T., Weisberg, S.R. Sexual Expression of Mentally Retarded People. Education and Legal Implications. American Journal on Mental Retardation, 1988;93(3), 328-334.
Kintis, G. Sexual education in Greece: Concerns and suggestions (1998). In Paraskevopoulos, J. Bezevegis, H., Giannitsas, N., Karathanasi, A. (edit) Intersex Relationships. Volume B’. Athens: Greek Letters.
Ioannidi–Kapolou, E. Use of contraception and abortion in Greece: a review. Reproductive health matters, 2004;12(24), 174-183.
Cambridge, P., & Mellan, B. Reconstructing the Sexuality of Men with Learning Disabilities: empirical evidence and theoretical interpretations of need. Disability & Society, 2000;15(2), 293-311.
Paschou, Ch. Teachers views on sexuality of people with mental retardation. Papadopoulou, K. (Supervisor) (2006). Postgraduate dissertation on Special Education, Department of Early Childhood Education, National and Kapodistrian University of Athens.
Giotakos, O., & Prekate, V. Sexual abuse. Secret? No more! (2006). Athens: Greek Letters.
European Intellectual Disability Research Network. Intellectual disability in Europe: Working papers (2003). Canterbury, Kent, England: Tizard Centre, University of Kent at Canterbury.
Thompson, J. R., Hughes, C., Schalock, R. L., Silvermann, W., Tasse, M. J., Bryant, B., Craig, E. M., & Campbell, E. M. Integrating supports in assessment and planning. Mental Retardation, 2002;40(5), 390–405.
Bablekou, Z., & Kazi, S. Intellectual assessment of children and adolescents: The case of Greece, International Journal of School & Educational Psychology, 2016;4(4), 225-230, DOI: 10.1080/21683603.2016.1163655.
McCabe, M.P., & Cummins, R.A. Sexuality and Quality of life among Young People. Adolescence, 1998;33(132), 761-773.
Siaperas, P., & Soulis, S.G. Sexual education and psychosexual problems of people with mental retardation. Psychology, 2011;18(1), 73-84.
